Parents & Caregivers of Teens with Epilepsy

Information for Parents & Caregivers of Teens with Epilepsy

It's important to work with your teen as they mature.

Teens with epilepsy navigate the world in many of the same ways other teens do, but they have to also focus their energy on maintaining their health. Parents and caregivers are an essential part of a teen’s health. They can support and guide their teen to learn more about epilepsy, what type of seizures they have, and best practices to manage their epilepsy. Laying the groundwork for your teen to manage their epilepsy will have lasting impacts in adulthood.

Parents and caregivers can empower their teen to take an increased role in managing their health. This can be a slow process, starting around the age 12-13 and intensifying as a teen nears adulthood.

Preparing for the Transition

How do I prepare for my child's transition to an adult provider?

Have your teen do things to help manage their health:

Resources for Parents & Caregivers:

Transition Questions to Ask your Child's Doctor
Parent Transition Readiness Assessment
Teen Transition Readiness Assessment
Differences between Pediatric and Adult Care

The Transition Appointment

The Right Way to Discuss Transition

The Wrong Way to Discuss Transition

Prepare a Medical Folder

Making a medical folder with your teen can help them learn to manage their health care information.

Have your teen take the folder to all of their appointments so they can refer to it for any information they may need. The forms included here are just the basic forms we suggest including in you teen’s medical folder. Some of the forms should be filled out with your doctor. These forms and other important medical information is important to keep in one place that is easily accessible.

Suggested forms:

Medical ID on your Teen's Phone

You can store medical information in the Medical ID section of their iPhone or Android phone.

Additional Resources

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