After a year of staying home, 2021 felt like the perfect time to get together. In March, EFCST hosted our first ever Youth Retreat for young adults with epilepsy — we wanted to bring together friends for some fun and respite after a long year of social distancing. 

Participants made new memories while enjoying four days and three nights in the great outdoors. We enjoyed archery, fishing, and even learning to groom horses’ hair! Our young adults loved connecting with the animals and nature out on the ranch.  

One of the goals for this retreat is to connect people living with epilepsy with others who know first-hand the challenges of living with seizures and taking their medication on time. Not only did participants enjoy fun outdoor activities, but they were also able to share their personal experiences in a safe environment. Program Manager, Jessica Strom, and Dr. Kate Labiner held a long discussion about epilepsy, seizures, medications, and other super informative topics. Our youth had the opportunity to ask lots of questions and learn about how to be more independent. 

Parents of our participants were happy to share with us: 

“She truly enjoyed the activities and getting to know everyone in the group. After a year of COVID, this retreat was also very timely. We sincerely appreciate all of you and the time you devote to these young people.”

A.R.

“My daughter had a fantastic time! I’m so grateful to you all. She has been even more isolated than usual lately so getting out with peers was amazing. She also took a lot from the session with Dr. Kate. You are all the best!”

– D.M. 

The last night of the retreat ended with everyone gathered around the campfire, eating s’mores, laughing, and making lasting friendships. We closed out the retreat with a fun night of dancing and karaoke, singing songs like Selena’s Como La Flor. 

Everyone enjoyed themselves after a long year at home and were able to take home valuable information to better manage their epilepsy. We look forward to another fun and memorable experience next year! 

If you’re interested in joining future EFCST program activities, please contact Camp Manager Denise Acosta at Denise@EFCST.org.

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